Hospice care involves a team-oriented approach to expert medical care, pain management, and emotional and spiritual support tailored to caring for people facing a life-limiting illness or injury. The model is focused on quality of care and life and takes into account the patient's needs and wishes. A detailed history about hospice care is outlined on the National Hospice and Palliative Care Organization page.
National Statistics and Surveys
National Study of Long-Term Care Providers (NSLTCP) is a new initiative by the National Center for Health Statistics (NCHS) to provide reliable, accurate, relevant and timely statistical information to support and inform long-term care services policy, research and practice. The main goals of NSLTCP are to: (1) estimate the supply and use of paid, regulated long-term care services providers, (2) estimate key policy-relevant characteristics and practices, (3) produce national and state-level estimates, where feasible, (4) compare among sectors, and (5) monitor trends over time. NSLTCP is a biennial study of adult day services centers, residential care communities, nursing homes, home health agencies, and hospice agencies. NSLTCP uses administrative data for home health and hospice agencies obtained from the Centers for Medicare & Medicaid Services (CMS).
It is estimated that there are 4000 hospice care agencies in the United States (2014). The number of patients was 1.3 million in 2013. For more data and statistics, visit the NCHS website.
The National Hospice and Palliative Care Organization also provides an annual overview of hospice care delivery. Their annual report can be accessed here.
The National Institutes of Health has a number of Funding Opportunities pertinent to hospice and palliative care needs for individuals with rare diseases as well as their caregivers. Below are some currently active announcements (as of November 2017):
Training Opportunities - Becoming a Hospice or Palliative Care Specialist
There are a variety of formal training programs, certificate programs and research training opportunities available in hospice or palliative care. These programs include formalized curriculum to help individuals become a specialist in hospice or palliative care.
Graduate Studies in Hospice and Palliative Care
Post-Docs in Hospice and Palliative Care
Other Opportunities for Training